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Category: hearing impaired

When Algorithms Forget You’re Human

Design, Empathy, and the Cost of Ignoring Choice

Open Source & Feelings robot logo with a vice bubble stating the conference name.

About 10 years ago I gave a talk called “Designing with Empathy” at Open Source & Feelings. One line I’ve kept coming back to: empathetic design makes badass users. It wasn’t just about accessibility checkboxes; it was about recognizing that people navigating our digital world are already doing the heavy lifting. They’re managing disabilities, mental health, trauma, and life circumstances that no wire-frame captures.

Then there’s Ethan Marcotte’s reflections on painful “memories.” His family went through tragedy, and then kept getting reminders of the tragedy from social media. His social media usage changed because of this, with significant effect. He writes about losing the people who taught him to see differently. The activists, artists, writers, and the ones who walked different paths and shared their perspectives. When those connections vanish behind algorithmic walls, we lose more than content. We lose humanity.

These threads converge on something uncomfortable about our current digital landscape: when systems stop respecting people’s choices, they don’t just annoy—they disable.

The Algorithm That Won’t Take No for an Answer

My wife grew up with an eating disorder. As an adult, with time, patience, and therapy, she has excellent control. She’s done well. Really well. But recent disability changes that reduce what she can eat and how much she can move of course led to weight gain. As a couple who’ve been disabled for years, we understand this is a natural, expected outcome of medical treatment and bodily healing.

Her YouTube feed? Serves GLP-1 ads every break from Ozempic, Wegovey, and others. Skin removal surgery ads from Sono Bello. Weight loss programs from Weight Watchers and Rovo.

She blocks them. Repeatedly. Every single time. Sono Bello has kept showing the same ad despite blocking it 11 times. And we shouldn’t need to pay for premium to save her mental health. Can she not watch YouTube? Sure. If the creator provides another way.

The algorithm doesn’t care. It sees a body, not a person. It sees data points, not dignity. It sees sales dollars, not emotion.

And it’s not just YouTube, Meta, or Twitter. Amazon Prime Video does the same thing. Amazon also has no way to mark content as problematic. No “stop showing me this.” No “this is harmful to me.” Just endless repetition of whatever the engagement metrics think you want. And if you go to the controls during the ad, it is still seen as engagement.

This is design that actively works against people’s well-being.

A moment of rest during serious topics. Enjoy sleepy puppies.
A moment of rest during serious topics. Enjoy sleepy puppies.

The AI “Yes Man” Problem

AI systems contribute to the problem. And as Generations Z, Alpha, and Beta grow up they are relying more and more on AI as the “source of all truth.”

Generative AI is programmed to make users happy. That sounds nice until you realize what it means:

  • AI lies about idea feasibility to avoid hurting feelings. “That’s a great concept!” when it’s technically impossible or ethically questionable.
  • AI uses your data to encourage spending. You mention wanting to learn guitar? Suddenly there are ads for expensive gear. You share a hobby? Now it’s monetized. And you don’t need to tell the AI. It has access to that from the social & economic tracking that exists on you.
  • AI isolates us from friends and hobbies. Why go to a real community when the AI companion is always available, always agreeable, always there? Have rejection trauma from past relationships? AI doesn’t reject you.
  • AI inflates user ego. It’s a “yes man” that never challenges you, never pushes back, never says “this might not be the best path.”

Companies like OpenAI, Anthropic, Google, and Meta aren’t building tools to help us think better. They’re building tools to keep us engaged, spending, and dependent.

They train on our conversations. They learn our vulnerabilities. They sell access to our attention. And they call it “helpful.” Github is launching an opt-out policy for its AI to use your code (private or public) to train the AI. I’ve opted out.

I’m not exempt from this critique. I’m aware that even this conversation could be logged, analyzed, and used to improve engagement metrics somewhere. That’s the trap we’re all in.

How “Optimization” Creates Disability

I’ve spent years talking about how empathetic design recognizes users’ existing labor. They’re already managing so much. Our job as designers isn’t to add friction—it’s to remove it. But what happens when the friction is the product?

"It's a Trap" shouted by Admiral Ackbar from Star Wars. Ackbar is a species call the Mon Calamari and are humanoid, bipedal beings from a water world. Their heads resemble a squid's.
  • Social media algorithms optimize for engagement, not mental health. Depression correlates with doomscrolling. Anxiety spikes with infinite feeds. Each clip that makes you smile, laugh, sad, or click is a dopamine hit that keep you locked in. Just like gambling, “Just one more video!” The metrics reward exactly what harms the user.
  • Advertising systems treat repeated rejection as a puzzle to solve rather than a boundary to respect. “They blocked it, but maybe they’ll click this time!”
  • Platform designs make it harder to opt out than to stay engaged. Dark patterns everywhere. Amazon Prime Video doesn’t even give you the option to flag problematic content.
  • AI assistants agree with everything you say, even when you’re wrong. They don’t protect you from yourself. They empower psychosis and delusion in previously rational people.
  • When people with disabilities navigate these systems, the burden multiplies. Cognitive load increases. Mental health deteriorates. And somehow, we’re told to try harder, download another blocker, be more resilient.

The problem isn’t the user. It’s the design.

The People-First Gap

I spend my days working on web accessibility. I’ve presented talks on building interfaces that work for everyone. I’ve written about supporting both mouse and keyboard users, about making sure drag operations work with single pointers, about the grief I feel every time I see a design that excludes people.

But accessibility isn’t just about screen readers and contrast ratios. It’s about agency. Can people control their experience? Can they say no? Can they trust that their choices will be honored?

When my wife blocks an ad and it comes back anyway, that’s not just annoying. It’s a message: Your choice doesn’t matter. Your body is our asset. Your recovery is our opportunity. Your mental health is more profitable when it’s bad.

What Would Empathetic Design Look Like?

Hard topics take time to process. This is a photo of a forested river flowing over some rocks. It's a longer exposure, so the rapids and splashes all smooth out as time does when looked on a broad scale.
Hard topics take time to process. This is a photo of a forested river flowing over some rocks. It’s a longer exposure, so the rapids and splashes all smooth out as time does when looked on a broad scale.

If we actually applied the ideas I’ve been talking about for years:

  1. Respect repeated choices – Block once, block forever. No “maybe they changed their mind” algorithms.
  2. Prioritize well-being over engagement – Measure success by user health, not time on site.
  3. Transparent controls – Make it easy to see what data is being used and how to change it. Give people the option to mark content as problematic.
  4. Honest AI – Systems that tell us when we’re wrong, when something won’t work, when we should disconnect and talk to a real person.
  5. Human review for edge cases – When algorithms fail, have humans who can actually fix it.

Marcotte’s grief over losing voices reminds us: platforms are supposed to connect us to people, not replace them with optimization loops. When we lose the messy, unpredictable, human parts of digital spaces, we lose something irreplaceable.

The Hard Truth

Moving Forward

I’m not naive. I know platforms need to make money. But there are ways to do that without treating people like data mines.

For my wife, I want her to see ads that match her actual interests. I don’t want her medical history driving her ads (HIPAA?). I want her to feel supported, not surveilled.

For all of us, I want digital spaces that remember we’re human. That respect our boundaries. That prioritize our well-being over their quarterly targets.

Empathetic design makes badass users. I’d add: empathetic design makes badass companies, too. Because when you treat people well, they stick around. They trust you. They come back.

Not because they’re trapped in an engagement loop. But because they choose to.

What would you change about how platforms handle user preferences? I’m listening—and I promise, unlike some algorithms, I’ll actually remember what you say.

Follow-up questions I’m curious about:

  1. Have you experienced similar frustration with algorithms ignoring your preferences?
  2. What would “honest AI” actually look like in practice?
  3. How do you balance business needs with genuine user well-being?
  4. Are you comfortable with AI challenging your ideas, or do you prefer validation?

Hit me up on LinkedIn or BlueSky to continue the conversation.

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Quick Tip: Do Not Replicate OS Behavior

This applies to browser behavior as well. I’ve been encountering a significant number of sites recently where the site tries to offer the user ways to make the site more accessible. Sometimes these are part of an overlay or widget providing accessibility “fixes” and sometimes they are part of the core code. In both cases they are taking the wrong approach to implementing help. Let me explain why.

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A11y 101: 2.2.2 Pause, Stop, Hide

It was Christmas Day in 2012 that I had my first major incident. You see, for as long as I could remember I suffered from migraines. I recall having to takes days off school when I was a freshman. But they started before that. At this moment in time, I was getting 20+ migraines a month. I had migraines that would last days. I had some last hours. Those were the worst. I’d start to feel better to only have another come on before the end of the day. Along with the migraines would come anxiety, nausea, dizziness, brain fog, aphasia. But that day was different.

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A11y 101: 2.1.4 Character Key Shortcuts

Hopefully those of you working towards EAA are breathing a little easier today. While some of you were pushing last minute updates, I attended my local Pride celebration.

Well organized and attended, it reminded me why I do this work. People from 1-99+. People with visible disabilities. People with disabilities only visible because they made it so by wearing a device to control the disability (hearings aids off, headphones, walkers instead of canes). This wasn’t a celebration of LGBTQ+, this was a celebration of people being people.

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A11y 101: 1.4.12 Text Spacing

The internet is made for consuming content in two main ways:

  • Visually – reading articles, posts, and stories; watching video, short and long form, photographs, and animation
  • Audibly – listening to music, speech, screen (via assistive technology)

But the people using the internet don’t all follow the rules and need modifications. One area where we see a lot of modification for customer control is through the text layout. In some cases the issue could be the font, the font weight, or color that makes it difficult to read. Sometimes it’s just the spacing.

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A11y 101: How to test manually

Too often, I see companies touting their high accessibility scores. They use tools like aXe Core, Lighthouse, Access Engine, or other free automated tools to derive them. But this only tells a part of the story, and it doesn’t even tell half of it. Let’s explore what is needed, why, and how we go about continuing the testing.

Important Disclosure

I work at Level Access. We have our own toolset that we use internally. While I work there, I try to remain agnostic in talking about tools and techniques.

Tools

Like any project, we need a few tools to help us do the job we’ll need.

  • Computing Device – This can be a Windows, Mac, iPhone, Android device, tablet, or even Linux. We can’t test websites without accessing them.
  • Screen reader – This will be device dependent. The Apple products have VoiceOver. Android has Talkback. For Windows, there is Narrator built in, JAWS, and NVDA. I recommend NVDA as it doesn’t lie and is free open source software. I also caution on relying on Narrator. It’s initial use was just to get someone to the point where they can download a “real” screen reader. Microsoft has continued to update it. It is acting more like a screen reader now. However, there’s still work to be done.
  • Browser – Unless you are working with VoiceOver, the recommended browser to use is Chrome. It has the largest market share and is at the tech edge of production browsers.
  • Spreadsheet – to log findings. Include columns for at least:
    • Finding description
    • Finding recommendation
    • Page found on (URL)
    • Guideline
    • Screenshot (I like to use ScreenCast for storing these images.)
    • Steps to reproduce
  • WCAG’s Quickref for the level I am testing against. I test to 2.2 A and AA as my standard.
  • Mouse
  • Keyboard (Doing a mobile audit? Use a Bluetooth keyboard without the screen reader.)
  • Automated tooling – It does help to run automatics at the beginning of an audit. It will reduce the time you spend documenting issues.
  • Contrast checker
  • Scope document
  • Objective of the audit

Setup

We’ve gathered our tools and we are ready to begin testing…or are we? The last two items I mention in the Tools section are a scope and objective. We need to know the objective of the audit. Is it to update their backlog with any accessibility issues? Is it because they need a VPAT? I ask these questions because it influences how I scope.

Scoping is an art to itself. I’ll give a brief overview here. The first part of scoping is understanding the objective and the primary flows.

Look at each primary flow. Are there shared experiences? Yes, we probably only need to test one. Do they use the same header or footer? That can be one unit to test as it is global. Identify patterns used the site and capture them. If pages use templates, say a product details page, capture one of each to test. A thorough audit will likely involve more than 10 pages or units to test. Most of my clients come in around 15-20.

If there is a need for a VPAT, we will add a few more pages. We want to make sure we capture a sample of everything. In the first audit style we may not look at the About Us, Contact, Terms & Conditions, etc. But with a VPAT to be authored, I would be reviewing these as well.

Setup your spreadsheet. I like to make pivot tables and drop downs for key sections. Like which guideline is involved, what disabilities are affected, anything where you will be repeating things from a limited collection.

Step 1 – Mouse

If your vision requires a screen reader, use it instead of the mouse.

Time to start testing. You have your scope. The key here is getting to know the site layout and functionality. Go through every single page in your scope with the mouse and only the mouse. Figure out what items are active controls and how they respond to the mouse.

Step 2 – Automatics

Now that I have familiarized myself with site, I run my automatic testing tools. Depending on the tool you use and how you have it configured, you’ll have a few ways to do this. Some tools look at one page and report findings back in the Chrome Developer tools. If they allow you to export them to a spreadsheet, collect that. You have one for each page tested to compile later. If it doesn’t export, you will need to manually copy them to your spreadsheet.

You may want to roll your own testing bot that can push content to a database. There are several free and open source tooling that will let you run a headless browser with Node.JS to make calls to pages and return the tested output. I’m now playing around with this for a different project.

Automatic tools at best cover 40% of all WCAG criteria. If a company says their AI enhanced tool does better, you may hit 50% coverage. This is because AI doesn’t understand intent, purpose, or how people think into account.

Review every automatic to make sure there are no false positives. Every company out there is saying they get fewer or no false positives. I have yet to find a tool that can honestly say “zero false positives.”

Step 2 – Keyboard

If your vision requires a screen reader, skip this step.

Keyboard testing is based off our mouse testing. We now want to navigate the site like we did in step one without the use of the mouse. We want to ensure that only active controls receive focus. We also check that controls can be used by the keyboard fully in their design. Log anything that doesn’t work properly with keyboard only. Log anything that gets focus, yet is a static element. Caveat – if the link is an in-page link and the target is static a tabindex of -1 is allowable. Repeat this until the page is completely reviewed.

Now you may want to move onto another screen, and that’s fine. Many folks like to go through a project with one tool, then the next. I test my projects by page or screen. So I go through all the steps on a screen, then mark the screen done. You do this as it best works for you.

Step 3 – Screen reader

Pick your screen reader. Remember, these are often device dependent. Repeat Step 2 with the screen reader on. Now, we are determining if the active controls have proper accessible names. Do the names include the visual text? Will they work with the screen reader?

Advice

Step 4 – Color contrast

Pick your picker! Until you are capable of computing contrast ratios with your own eyes, you will need a color contrast testing tool. There are dozens out there. My favorite is Level Access’s Accessible Color Picker. Before that it was Colour Contrast Analyzer.

Which one matters less than if it is giving you accurate ratios.

Advice

Step 5 – Reading level

You need to know the audience of the site or product you are testing. For instance, the targeted audience of this blog is people interested or involved in accessibility work. I have some basic posts, and some more advanced. My language is always meant to be as simple as possible. However, there are specific things I expect others in the domain to understand. One of these is the term WCAG.

Why do we need to know the audience? Because we need to check if the writing on the site is hitting the right audience.

For instance, providing a legal interpretation of a document. If the audience is other lawyers, you use one style. You include as much jargon and as many shortcuts as possible, because you expect them to know the domain.

If the audience is the general layperson, we need to write as if speaking to 13-year-olds. Our language should be clear and simple.

Over a decade ago, I wrote about this for the A11yProject.com. The post is still up and accurate. I’ll relist the resources for testing before the next step.

AI has many great features. One is its ability to identify when text should be simpler. I use it all the time to help clarify my writing. You may be able to use AI-based tools for this. It depends on your access to the admin portion or source code.

Resources:

Step 6 – WCAG SC

When it seems that I have completed my testing, I bring out the WCAG Quickref again. One by one, I read each guideline’s purpose and understanding. For each one, I’ll think through if I might have missed this in my testing. I check each page in scope and log anything I forgot to log earlier.

Follow Up

Now what do you do? Well, this depends on your contract. Good things to do with your client are review the list. Pull out 5-10 of the most important issues. Explain why you pulled them, their impact to users, and how to fix them. Leave them with a priority list of fixes. You could complete a VPAT and issue an ACR. You can work with their team on remediation efforts.

You don’t want to leave the client hanging. Don’t just log 100 or more bugs and walk away. Because next year when they update the product, they’ll need more testing. When they roll out a new product, they will need more testing. Help the client improve through training, fixing, or guiding them.

Don’t do this for free either. When I was independent, I would charge for the evaluation based on scope, not hours. But I’d also put in a recurring monthly support charge. This included 5 – 10 hours monthly paid up front. It is a retainer I take regardless if they use that support. If the time used in a month exceeds the retainer, that gets added to the next invoice. But now we’re entering business practices and that is a different blog post.

Happy Global Accessibility Awareness Day (GAAD)! Have questions or want to discuss this, hit me up on LinkedIn and BlueSky.

A little bonus – Level Access has a lot going on today if you’d like to check out training.

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I’m wrong. This is good.

I’ve been in the tech industry for over two decades. I’ve worked with Java, PHP, Ruby, JavaScript. I have really strong HTML and CSS skills. I know accessibility and how to manage an accessibility program. I talk weekly with executives and attorneys about their legal risks under ADA, EAA, Section 508, and other standards. I guide them on how to make their program robust to mitigate future legal action. And I’m wrong. Often. And I’m willing to admit it every time.

We are human, we make mistakes

You will make a mistake. Hopefully it is small. But no matter what, it is OK to make mistakes. What matters is how you respond to your mistake. Take ownership. Review your thinking to see what you missed. If you can’t figure it out easily, ask for help.

The number of things I don’t know about in the accessibility space is tremendous.

– Nat Tarnoff

Sometimes the only way to learn something is to fail at it first, or for the 10,000 time. If you fail, own it and work it out. Feel free to fail.

I am not an expert

I’m highly trained. I’m highly observant. I think outside the box. Throw whatever corps-speak you want my way, I don’t care. I learn something every day or I try to. The number of things I don’t know about in the accessibility space is tremendous. I’m not a writer, so I’m still learning about content creation. I’m trying to expand my knowledge and I’m sure I’ll never understand it all. And this is good. It drives me. It gives me space to fail. So when I do fail, I can learn, fix, and grow. And the more work you do, the less you will fail in that field.

Don’t believe the experts

If someone claims to be an expert and knows all the the things, make a tinfoil hat. This person may be highly skilled, but they have a superiority issue and will be hard to work with. They have hardened opinions on techniques. Even if the best advice has moved on, they stick to the old approaches. You have valid questions and ideas. Changing the “expert’s” mind will be challenging if your ideas and feedback challenges their idea of perfect. They will be less willing to look at new research. They’ll take offense to your opinion and suggestions.

How to challenge someone

This isn’t mine, I just learned it Thursday night and love it. Thank Kai Wong for it. The first thing is not call someone out. You call them in. If you see someone make a mistake, take them to the side and let them know. Give them the chance to fix it.

But there are some places we don’t get to call them in. Some platforms have a code of conduct that only allows direct, private messages if you get permission publicly first. In those cases, you may have to call them out.

Like I was the other day. I made a mistake and left part of my thinking out of a response. Someone else in the community asked for clarification. This made me revisit the comment. Turns out they were right. I made a mistake. I admitted it, corrected my meaning and thanked them for challenging me.

Time to get back to work

Keep learning. Challenge the experts. Your input and feedback is important to grow this community. It enhances our understanding of standards. It helps us know where to create new standards and when to throw others out.

Have comments or thoughts on this post, let’s talk about it on LinkedIn or BlueSky.

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K.I.S.S. ARIA

Keep It Silly Simple

I sat down to review some code with my colleagues. It was clear that each of these solutions was heavily over-engineered. Each used custom web components, React, Angular, or other framework, and even basic HTML with aria added. All of them should get slimmed down and work to reduce or remove ARIA.

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A11y 101: 1.3.3 Sensory Characteristics

I have a bad habit of saying, “this is easy” or simple. It’ll only take a moment. Like I said, a bad habit that I try hard to break. Why? Just because it is easy to me doesn’t mean it is to you. I was about to start this off with, “This is pretty much straight forward and don’t reference anything requiring senses.”

And I realize, that this isn’t that simple. I’ve been doing this for over two decades as of this writing. Today may be your first day. English may not be your first language. Maybe you can’t relate to the idea of senses.

What do we mean by Sensory Characteristics?

All animals on the planet have the ability to experience their environment. They do this with their senses. Senses are built in detectors to assess our environment. In the accessibility industry, we create solutions. These solutions are for people who may have malfunctioning senses.

When we are little, we are taught about our 5 major senses: Sight, Taste, Touch, Hearing, and Scent. But we also have senses that can detect electrical stimuli, heat, cold, our awareness in space. If you tell someone to find the green button, you’ve violated the success criteria.

So how do we avoid it?

First, we make sure that everything has a proper accessible name. Next, we make sure it unique to the page we are on. It’s super easy to say, “click the submit button” in your instructions if there is only one submit button.

Of course we want to keep the page as simple as possible, so we probably won’t use instructions like that. We wouldn’t say, “click the triangle.” Instead, we should let the construction of the page tell us what to do next.

This looks like first coding the HTML so that if nothing else loads everything is presented and understandable. You can’t position items in a visual order or paint them pretty colors. You also can’t make them do magic. Therefore, we need to rely on the content itself. If your content can’t stand on it’s own, rewrite it.

With the content corrected, we can build out the site. Paint it, position it, then test it. Does it still make senses in the reading order? Focus order?

Lastly, teach the team. Make it an internal standard. Put in monitoring just in case someone makes a mistake.

Want to discuss this more? Come say hi on BlueSky and LinkedIn.

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