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Tag: chronic illness

On Depression

Society has many ills. People are fallible and get themselves addicted to unhealthy things all the time. It may be overeating, under-eating, gambling, alcohol, or drugs, but each of these people is dealing with a pain that their particular addiction gives a little bit of relief from. We recognize that these addictions are diseases; we spend millions a year advertising and partaking in various treatments for them. We recognize that people who have these addictions need to take life a day at a time; there is no magic wand for addiction. It is a constant struggle. But many of these addictions are just covering what the real problem is, mental health. As a society we don’t talk about mental illness. We don’t admit that is too is a disease that takes a daily fight and this needs to change.

Trigger Warning – I say some things some folks won’t like

I’m sure you’ve heard it before, “Depression is hell”. Depression is a deep dark cavern that makes it hard to see the good happening around you. It can be all consuming and weigh you down like an anchor. We look for the light, but too often we can’t see it. But everyone experiences their depression a little differently. I want to describe my depression, because I’ve experienced a lot of it, and it gets reflected in everything I do in one way or another. I can’t speak to all mental health issues, I can only speak to mine. Hopefully by sharing, you will learn what I deal with. Maybe you can relate, maybe you can’t. What matters though is that you take me seriously, as well as all others with mental health issues. Respect them and don’t judge them.

Emotional Heart vs. Rational Mind

I tend to think of myself as a rational person. I have a degree in philosophy and enjoy a hearty debate. I excel in logic problems and write code for a living. I work well through puzzles, yet I am at the same time quite emotional. Every moment of every day I have to make a decision on whether to listen to my emotional heart or my rational mind and they are usually in conflict.

The Cycles of My Depression

The Good

When things are good, like when I fall in love, it becomes very hard to discern between my heart and mind. They want the same thing. My heart is a solid rocket booster burning furiously in just a few moments, while my mind is the long lasting candle you are glad you packed for the tornado kit. I have to choose, and usually fail, to slow things down and take one step at a time. Since both heart and mind want the same thing, the heart usually wins and I get consumed in the flames. Typically, this means something else gets ignored. My health, house, family, or friends are the most likely culprits. If I could follow my mind a little more, I could have it all.

The Bad

When things are bad, and they usually are bad, it is a lot easier to see, but harder to follow the right path. The dark thoughts range from worry about money, weather, or health to unidentifiable panic and self-harm. Very few of these thoughts deserve any merit. Most are nonsensical to begin with and can be quickly forgotten when I’m healthy. A few, like worries about money, are legitimate concerns exaggerated by my unhealthy thoughts. When carefully examined, they are easily dealt with. And while I say I can forget, reason, or ignore things, what often happens is I clench onto them like a kraken around a whale. It’s this grasping and holding that turns into the depressive spiral. I get tunnel vision and only see this one problem, ignorant to all the good in my surroundings.

I tend to be a hypochondriac, which sucks, but sucks even more when you have actual health problems without solutions and cures from doctors. I also get really lonely. I have a full house, two kids and three cats, and lots of people who care about me, but that doesn’t change the fact I get lonely. In the flick of a switch, I can feel like the last person on the planet, while having a conversation with someone sitting right in front of me. Working from home and only interacting with people in a digital realm doesn’t make this easier, but my physical health precludes me from working in an office every day.

The Ugly

I think about suicide a lot. I have since I was a kid. I’ve tried to take my life several times in the past. I plan not to do it again. This is a very important statement. It isn’t that I don’t plan to kill myself, but I specifically plan NOT to commit suicide. I have no desire to die. I want to live, watch my kids grow up, travel the world, help people build better technology, and make beautiful art. I want to climb mountains, hang out with my brother, sister-in-law, nice and nephews, maybe even relearn to surf. It doesn’t matter though. Every day, sometimes every hour, sometimes every minute, I have a thought of suicide. When I’m having a bad day, especially if I’m in a lot of pain, I am in a constant struggle of having a suicidal thought and letting it go. Medication only takes the edge off so that I win these battles more than lose.

How I navigate the day

I use meditation as a practice to learn to let go thoughts. Focus on the breathing. When a thought comes in on something other than my breath, acknowledge it and let it go. This takes focused effort. When I’m depressed they don’t just go away. My heart requires justification before it lets go. This means half my time and mental energy is spent debating my inner self, just to keep moving forward. Think about that. Think about how much time you spend on solving a problem and then try to solve that same problem if every other second you had to argue with someone about a completely pointless and random thing. It becomes really hard to get into a flow space for solving hard problems with this going on.

Meditation for me, and while I know a lot of folks who have had it work for them, it will not work for everyone. I still get into a funk periodically, but most days are better now. I know I can ride out the dark times, but many people with depression can’t.

“Just Get Over It”

Depression isn’t something to “just get over” for most people. Don’t say this to anyone. It shows a clear lack of understanding of what they are going through and a lack of compassion for them as an individual.

Depression is a daily struggle. Some of us have the upper hand on our depression right now, but I can assure that many will eventually slip, needing more understanding, and maybe some help some time in the future. Others are in the heat of the battle and are losing. They can’t break the cycle of bad thoughts. They need understanding, patience, and when they ask for it, help. You can’t force someone into accepting help, so don’t even try. No matter what you do, if they aren’t ready for it, it won’t stick. This doesn’t mean you shouldn’t call for help if they are hurting themselves or others. There is emergency help and long term help. If a person is a threat, emergency services need to be brought in, no questions.

How You can Help

One in five people struggle with mental illness every year. Twenty percent. More people suffer with mental illness than smoke cigarettes. This isn’t some small group we can cast out. These are your neighbors, friends, lovers, parents, cousins and children. Break the stigma and taboo. Talk about it openly and acknowledge that it is a disease that people struggle with daily. More people have mental health issues than breast cancer every year, yet we talk about it less and spend less money fighting it. It is up to you to be compassionate, patient, offer an ear when you can, but always give someone suffering from mental health the same respect as anyone else.

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Managing Chronic Illness While Working

Shortly after I developed my vestibular disorder, I began working remote, from home. Even before that, my employer accommodated me by letting me work from home if I ever had a really bad vertigo day. For the last two years, all my work has been remote, until this month. I’ve now figured out that I have a way of working that best meets my productivity and health needs and when I don’t get to work like that I get cranky, frustrated, and highly inefficient.

For the last five weeks I have been consulting on a project in Minnesota. This has required me traveling to the Twin Cities and staying in AirBNBs during the week and coming home on weekends to be with my kids. This particular client felt they needed me onsite to teach their team in the ways of front-end development and user experience in addition to providing a design solution. Not realizing I had a way of working that worked best for me, I gladly obliged. What I didn’t see coming is someone micromanaging everything I do and how that would make me feel.

When I work remote, I typically work 50 to 60 hours a week and it doesn’t bother me. In fact I enjoy it. But these hours are never worked in a typical “9 to 5” fashion. I try not to get up with an alarm, when I get a headache or vertigo I take a rest or a walk, I work in three or four hour sprints and do get through two or three of these a day. Some days I need to work six hours. Others I can work twelve or even sixteen hours. When I need to go see a doctor (which happens quite a bit) or take care of my family, I do it and put the hours in later.

they often ask me, “How do you do it every day?”

During this contract though, my client has insisted that I work not only onsite, but 8 hours a day, 5 days a week. No more. I can’t work 10 hours if I’m in the zone. I can’t leave early or mid day and take a nap if I need one. I’ve also been asked to do 4 months worth of work in under two. If I could work my way, even while in the Twin Cities, I could probably accomplish this extreme goal. But since I’m limited to billing 40 hours a week, I keep having to adjust timelines and that makes me feel horrid.

When I speak to people about my migraines and vertigo, they often ask me, “How do you do it every day?” I honestly don’t know. I’m the kind of person that if I do absolutely nothing all day, I feel horrible and unproductive. So despite having health issues that probably should leave me in bed, I get up and work. I do something. I don’t get a choice. In the past, before my vestibular disorder, I would work and work and work, eventually crashing because I didn’t maintain a healthy balance. Since I developed the vestibular disorder, I’ve learned to manage each moment and day a little better. Yes, there are days, weeks even, when I will over do it and I pay for it in the end. I’m left incapacitated for an entire day or several. I’ve spent weekends in bed because I didn’t manage my work load in a week.

And I can feel it coming now. I see the crash on the horizon and I don’t know how to stop it, because I’m in a contract I can’t terminate in which I’m being micromanaged and trying to fit my health needs around someone else’s idea of work, rather than fitting work around my health.

As managers, employers, and coworkers it is important that when someone with chronic illness is working with you, it is important to talk with them to find out what they need to be the best at their jobs. For some, it will be working from home on a slightly odd schedule. For others it will be having the right equipment in the office. But for all of us, if we have the right tools, environment, schedule, and understanding to work our way we will be reliable and produce quality work. When we are forced to prioritize work over taking care of ourselves, we will not achieve the goals we set out with you.

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